Family, Parent Resources, Uncategorized

Including the Visible and Invisible

This week I tweeted Maureen Wallace’s article and received a big response. Inclusion means you don't freak out when I register my child with Down syndrome for a sport http://t.co/z0sgboaV61 via @sheknows — talk-downsyndrome (@talkds) September 22, 2014 It spoke to a common parent concern: That their child will be misjudged because of their diagnosis.… Continue reading Including the Visible and Invisible

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Siblings

Sister Spying: On a Date (!!!)

Do you have a sibling? Have you liked every boyfriend/girlfriend they've had? That's where we need to start. Hold that thought. A couple of weeks ago my husband, sons, and I were waiting for a table at our local pizza joint. Scanning the room my eyes stopped at a cute couple in one of the booths. That's when I… Continue reading Sister Spying: On a Date (!!!)

Family, Parent Resources, Siblings, Uncategorized

A day in the life – Sister Texts

A day in my life now usually includes text messages from my sister April, 26 with Down syndrome. This recent exchange highlights our typical interactions, joking, and general interest in each others' lives. April (A), Me (J) - Spelling and grammar kept as written. A: hey sis Lent season It's already started I'm forgiving up… Continue reading A day in the life – Sister Texts

Family, Parent Resources, Siblings, Uncategorized

3 for 21 Hop: Relationship Advice

Truth: Having a sibling with Down syndrome is beautiful. And ugly. And messy. And fulfilling. You can't put a single label on relationship. Tip: If your family is the solar system, don't make your child with *special needs* the sun. To understand this better, read Wonder by R. J. Palacio. Picture: Sibling shenanigans, Christmas 2011 See… Continue reading 3 for 21 Hop: Relationship Advice

Family, Oral-Motor & Feeding, Speech & Language, Uncategorized

A One Word New Year

Recently I read an article on SheLoves Magazine about the concept of a One Word New Year. Lose the list of resolutions and embrace where you are right now. Pick a word to guide you the next 365 days. That's the idea of a One Word New Year. This year the word for Talk-DS.org is Nourish.… Continue reading A One Word New Year