Family, Parent Resources, Siblings, Uncategorized

A day in the life – Sister Texts

A day in my life now usually includes text messages from my sister April, 26 with Down syndrome. This recent exchange highlights our typical interactions, joking, and general interest in each others' lives. April (A), Me (J) - Spelling and grammar kept as written. A: hey sis Lent season It's already started I'm forgiving up… Continue reading A day in the life – Sister Texts

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Parent Resources, Speech & Language, Uncategorized

What questions do we have about Down Syndrome?

Each I year I have the privilege to guest lecture for the speech-language pathology graduate students at the University of Cincinnati (UC) and Miami University. This summer, the UC class submitted questions to me ahead of time - a first. Here is what the pile looked like. I was excited to read the questions. Yes, all… Continue reading What questions do we have about Down Syndrome?

Parent Resources, Uncategorized

Make It Monday: Fulfillment Pyramid

Today's Make It Monday is not for your child. It's for you. Really! Let's be honest. Sometimes life hands you a bunch of lemons and you want to squeeze the juice into its eye instead of making lemonade. That's been my 2014: Week 1: My 5-year-old gets mono and we get all the questions that… Continue reading Make It Monday: Fulfillment Pyramid

Family, Parent Resources, Siblings, Uncategorized

3 for 21 Hop: Relationship Advice

Truth: Having a sibling with Down syndrome is beautiful. And ugly. And messy. And fulfilling. You can't put a single label on relationship. Tip: If your family is the solar system, don't make your child with *special needs* the sun. To understand this better, read Wonder by R. J. Palacio. Picture: Sibling shenanigans, Christmas 2011 See… Continue reading 3 for 21 Hop: Relationship Advice

Parent Resources, Speech & Language, Uncategorized

Make today a “One Thing Day”

"What was your 1 Word for 2014 again?" I had to ask myself this yesterday under a barrage of negative thoughts. I took a step back and told my inner critic to “shush it.” You see I’ve been lying in bed since Saturday night with the flu and pneumonia and feeling the pressure of not… Continue reading Make today a “One Thing Day”